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Make a difference Today

Every donation helps us fight for a future without Friedreich’s Ataxia. You’ll be supporting cutting-edge gene therapy research and giving children like Tom and Lev the chance to walk, grow, and live full lives.

SWISH: +123 291 07 27

Bankgiro: 893-5744

International Donations

You can donate from anywhere in the world:

Credit/Debit Cards: We accept Visa, Mastercard, and other international cards.

Bank Transfer: For international bank transfers, please use the following details:

IBAN: SE90 8000 0842 0283 4708 2557
BIC/SWIFT: SWEDSESS
Bank: Swedbank
Recipient: cureFAchildren
Organization number: 802551-2255

Thank you for standing with us and helping to save this generation.

Summer Gift – Final Version

Suggest a donation at your workplace

By encouraging your workplace to make a summer donation to CureFAchildren, you help advance a vital gene therapy program.

It's easy to take action – simply fill in the name and email address of the person responsible for donations (e.g. your manager, company owner or HR), and a pre-written message will be sent from you with a single click.

SEND THE SUMMER GIFT

Hi [recipient's name],

My name is [your name] and I would be proud if our workplace chose to support the approximately ten children born each year with the rare disease Friedreich's ataxia – two of them in Sweden. Tom (8) and Lev (5) are two of those children – born here in Sweden, in an ordinary family.

Their parents have started a gene therapy program and invested their own money to get it going. Private individuals have already contributed 1.3 million SEK. Now around 1.5 million is needed to take the next critical step: testing in cells (in vitro), followed by the production of AAV virus for preclinical animal studies.

To reach Proof of Concept (PoC), approximately 8 million SEK is required, divided across five phases – two of which are already completed or underway. About 1.5 million is now needed to proceed to phase three.

Time is short. Within a month, funding must be transferred to leading experts Dr. Steven Gray and Dr. Ryan Butler at the University of Texas Southwestern Medical Center (UTSW), as well as Dr. Marek and Dr. Jill Napierala – two of the world’s foremost researchers in FA.

Every donated cent goes directly to the gene therapy program – nothing to salaries or administration.

By giving a summer gift, we help carry out Proof of Concept (PoC) – the crucial first evidence that the treatment works in lab environments or animal studies. It is the threshold of hope, the step required to move on to clinical trials and eventually a real treatment for these children.

Without additional funds, the program risks stalling. That means in practice that children like Tom, Lev, and thousands of others will be forced to wait years for a potential treatment.

How to donate:
• https://curefachildren.com/corporate-donations/ – choose “Summer Gift”.

Every contribution counts and directly impacts the fight against the disease.

Tom, Lev and all other affected children deserve to grow up with bodies that develop – not deteriorate. They shouldn’t have to dream of surviving – they should be dreaming of a future. We, together with other companies, have the power to make that dream a reality.

This summer, we can give the approximately 40,000 affected worldwide more hope for a better life.

💙 Thank you for helping us create hope for the children.