Press & Media
Welcome to our press page. Here you can find articles, interviews, and media coverage that share our story — a family’s fight to give our two children and countless others a chance at life through gene therapy. Each publication helps us raise awareness, inspire support, and bring us one step closer to our goal.
We are deeply grateful to every journalist and media outlet that helps us spread the word.
Press & Media
Welcome to our press page. Here you can find articles, interviews, and media coverage that share our story — a family’s fight to give our two children and countless others a chance at life through gene therapy. Each publication helps us raise awareness, inspire support, and bring us one step closer to our goal.
We are deeply grateful to every journalist and media outlet that helps us spread the word.
If you would like to write about our story, learn more about our mission, or help us reach a wider audience, please contact us at:
We’ll be happy to provide more information, images, or materials to support your piece.
Thank you for helping us give hope a voice.



