Corporate Donations | CureFAchildren Non-Profit

Support Lifesaving Research – Make a Corporate Donation

Together for every child’s right to a future

Your company, organization, or association can make a vital contribution to our lifesaving gene therapy program for the approximately 10 children born each day with the rare and life-threatening disease Friedreich’s ataxia (FA). Your support truly makes a difference – bringing us closer to the goal of giving every child what they deserve: a future.

All companies that donate receive an official Certificate of Donation from cureFAchildren.

How your corporate donation is used

Your gift goes directly to our gene therapy program for Friedreich’s ataxia at the University of Texas Southwestern Medical Center – one of the world’s leading neurogenetic institutions. Thanks to your generosity, we can fund research, laboratory materials, and expert contributions – with zero administrative overhead.

About cureFAchildren

We are a parent-led nonprofit organization, and every dollar is used to develop an effective treatment – for our children and for everyone affected. Together we create hope and move faster toward a future where FA is history.

Frequently Asked Questions About Corporate Donations

Are donations to cureFAchildren subject to VAT?

No, donations to cureFAchildren are VAT-exempt.

How can our company donate?

You can do so by filling out the online form.

You can also choose to support us on an ongoing basis by becoming a corporate partner.

It’s easy to take action

Just enter the name and email address of the person responsible for donations (e.g. your manager, business owner or HR contact), and a pre-written message will be sent from you with a single click.

Donate

Direct Contact:

Zardasht Rad
zardasht@curefachildren.com
+46 73 655 38 37

CUREFACHILDREN
Org no: 802551-2255

Bankgiro:
893-5744

Thank you for helping us turn hope into action!

Does your company want to make a donation?

Fill in the details below and we’ll get back to you shortly. You can choose a suggested amount or enter your own. Every company that makes a donation receives a beautiful certificate – and contributes directly to lifesaving research for children with FA.

Summer Gift – Final Version

Suggest a donation at your workplace

By encouraging your workplace to make a summer donation to CureFAchildren, you help advance a vital gene therapy program.

It's easy to take action – simply fill in the name and email address of the person responsible for donations (e.g. your manager, company owner or HR), and a pre-written message will be sent from you with a single click.

SEND THE SUMMER GIFT

Hi [recipient's name],

My name is [your name] and I would be proud if our workplace chose to support the approximately ten children born each year with the rare disease Friedreich's ataxia – two of them in Sweden. Tom (8) and Lev (5) are two of those children – born here in Sweden, in an ordinary family.

Their parents have started a gene therapy program and invested their own money to get it going. Private individuals have already contributed 1.3 million SEK. Now around 1.5 million is needed to take the next critical step: testing in cells (in vitro), followed by the production of AAV virus for preclinical animal studies.

To reach Proof of Concept (PoC), approximately 8 million SEK is required, divided across five phases – two of which are already completed or underway. About 1.5 million is now needed to proceed to phase three.

Time is short. Within a month, funding must be transferred to leading experts Dr. Steven Gray and Dr. Ryan Butler at the University of Texas Southwestern Medical Center (UTSW), as well as Dr. Marek and Dr. Jill Napierala – two of the world’s foremost researchers in FA.

Every donated cent goes directly to the gene therapy program – nothing to salaries or administration.

By giving a summer gift, we help carry out Proof of Concept (PoC) – the crucial first evidence that the treatment works in lab environments or animal studies. It is the threshold of hope, the step required to move on to clinical trials and eventually a real treatment for these children.

Without additional funds, the program risks stalling. That means in practice that children like Tom, Lev, and thousands of others will be forced to wait years for a potential treatment.

How to donate:
• https://curefachildren.com/corporate-donations/ – choose “Summer Gift”.

Every contribution counts and directly impacts the fight against the disease.

Tom, Lev and all other affected children deserve to grow up with bodies that develop – not deteriorate. They shouldn’t have to dream of surviving – they should be dreaming of a future. We, together with other companies, have the power to make that dream a reality.

This summer, we can give the approximately 40,000 affected worldwide more hope for a better life.

💙 Thank you for helping us create hope for the children.