A new groundbreaking gene therapy program — our goal is to save this generation, fast. With your support, we will.
This is a nonprofit led by parents, fighting to save lives. Every donation goes directly to the research — and nowhere else.
Two years ago, both our sons were diagnosed with Friedreich’s Ataxia (FA). A brutal disease that slowly takes everything away–their balance, their mobility, and eventually their heartbeat.
But today there is hope – a revolutionary gene thearapy program is underway – and with your help, we can bring it to life in record time.
Whats happening now:
-Research has already begun. Feb-25
-We are working with worldleading gene therapy pioneers.
-We are racing against time.
–Every donation fuels the next breakthrough.
How can you help:
1. Donate now – every amount matters.
2. Share our story – Help us reach more hearts.
3. Be part of saving lives – The most beautiful act you can make.
Why can we succeed:
We are partnering with scientists who have already taken eight rare diseases to clinical trials, and more are on the way. This is real. This is happening now.
🧬 Join Dr. Steven Gray and leading pediatric neurologists in a powerful conversation on gene therapy, innovation, and hope.
🎥 Watch the reel and learn how research is becoming reality.
Completed Work towards Proof of concept (POC)
- Codon-optimized FXN gene ordered and inserted into plasmid
- Cloning and DNA kit, cloning succeeded on second attempt (one correct colony verified)
- DNA synthesis and cloning
- Sequencing confirmed correct gene structure
- Virus production (AAV vector, viruses being produced)
POC: timeline: If everything goes according to plan, about 1 year or slightly more
Next Steps
Support us by contributing a gift.
You can also support us by
SWISH: +123 291 07 27
Thank you. your generosity enables us to carry out our mission!
Contact us
Please fill out our contact form and we will be in touch shortly. We can’t wait to hear from you!